The clinical programs located within the Centre are an example of the partnership of Vancouver Coastal Health clinical care and UBC clinical research/trials.
Treating people living with Huntington’s Disease
The Centre for Huntington’s Disease (CHD) provides comprehensive care and support for individuals affected by Huntington’s disease (HD). The CHD also offers education and information about the disease and referrals to community services for patients and families affected by HD.
The expertise of the CHD research team spans the bench-to-bedside continuum, providing opportunities for family participation in cutting-edge clinical research trials. The CHD is also a teaching resource for many disciplines in the medical and foundational sciences, as well as the university and general public.
FAQs
Below are the answers to some frequently asked questions about the Centre for Huntington Disease.
In order to become a patient at the clinic, you must have a referral from a family doctor to see a neurologist, psychiatrist and/or genetic counsellor.
You can find the referral here.
Please have your family physician fax the referral to: 604-822-7970.
Patients are seen on Tuesdays only. Once your doctor has faxed in your referral, you can make an appointment by contacting Sandy Hazan at 604-822-7366.
Phones are answered Monday to Thursday: 7 am -4 pm
Appointments are made with a neurologist (approximately 1 hour), a psychiatrist (approximately 1 hour), and a social worker (30 minutes + for assessment of needs with follow-up as required). Should patients or family members make a request, appointments to speak with the clinical research manager and/or coordinator and genetic counsellor can be accommodated with advance notice.
If you are a patient at the clinic and are looking to confirm an appointment or follow up with any tests, you may contact the clinic at 604-822-7366 or sandy@cmmt.ubc.ca
The CHD has many opportunities to participate in research. You can find them here. Note that there is a drop-down menu for Clinical Research.
If you are interested in getting involved with research, you can reach out to Joji Decolongon, clinical research manager at 604-822-7928 or joji@cmmt.ubc.ca
You can learn more about predictive testing by visiting the CHD website.
The Huntington Society of Canada has a BC chapter that provides information and resources for people living with Huntington’s disease.
You can find out more information about this here.